Saturday, January 19, 2013

Saturday

I have been wearing the glasses for about 1 1/2 weeks and am encouraged with how I am doing!  My headache is still there, but it has gone down a few degrees and that is wonderful!   It is making the headache so much more more tolerable!  The bad thing with the timing, though, is that the Botox shots were to begin helping the middle of this past week as well.  That means that we won't know definitively that it is one treatment or the other that is helping or both at this point.  I have a follow up with the neurologist the beginning of March, so we will see where we go from there.  I am scheduled for the next set of Botox injections the beginning of April.

The thing that has not really improved is the ringing in my ears.  Irritating, yes, but I can deal with that if many of the other symptoms improve or (dare I say) disappear!

Interestingly, I brought Tanner up for the eye testing as well since he regularly has headaches and has some of the other symptoms they have found typical with this eye problem.  He definitely had it.  The doctor said that he was "off the charts" and will need to wear glasses as well.  The negative for him to start with is that he will need to wear his contacts for his regular correction and also wear the glasses for this focusing issue.  They are working on designing glasses that will correct for both and are also in the process of developing contacts for this problem as well.  So him wearing both will probably be temporary.

Riley said to me the other day that "I don't look as bad as he thought I would with glasses."  I'm not sure if that is a compliment or slam but I had to laugh regardless. Funny kid!

Tuesday, January 8, 2013

Tuesday

I have continued to feel quite overwhelmed with life.  I just can't keep up!

Last week Wednesday I met with the optometrist that is partnering with my new neurologist, an eye surgeon and someone else.  It was quite interesting because they are studying how the eye focuses.  If the focusing isn't working quite right, it can irritate the optic nerve, which then can cause irritation to another nerve which can cause headaches and neck pain.  This might be an underlying problem to the others that I have had.  I failed the test pretty badly, so they are pretty confident that they can help me with the current headache, at least to a certain extent.  The treatment is pretty simple and painless--glasses!  They have lenses that are made in Norway.

So next week Wednesday or so I will start wearing glasses.  They told me to wear them from the moment I wake up to the moment I go to bed and that I should see improvement after 4 days.  Another experiment so we will see how that goes!

I really apologize that I haven't been communicating with anyone!  I am so overwhelmed and home and work and so my communication with others has been almost completely non-existent.  I am attempting to shorten my office days a little bit in an effort to get on top of things physically but that isn't working so well yet, either.  One day at a time.  I have been so blessed, so when I get frustrated with all of this I really have been trying to focus on how blessed that I am and we are as a family to have me at least partially back!

Tuesday, January 1, 2013

Happy New Years

Yes, it is past time for me to go to bed, and that is the next step I will take!  I can't believe that another year has passed!

Kyle gave me a shot Sunday night right when he came home from church and then I went to bed.  I woke up feeling much better which we were all pretty thankful for!  It put some fear in all of us, but particularly the younger two kids.  They, of course, assume that the next step is the hospital so it was good for them to see me okay the next morning.  But then I should say it was a pretty good for all of us!

I went to the neurologist on Monday and had the new treatment done.  I am not supposed to feel any effects for about three weeks, and the next treatment will be the beginning of April.  The doctor said that often the second treatment is more effective than the first.  Tomorrow I have to head up there again for an eye test that is part of a new study.  Hopefully I will know more about that after the test is done.  So enough for now!